Coming Events

Date TBD ~ CSRG
The Scleroderma Association of Saskatchewan has donated $7,000 to the Canadian
Scleroderma Research Group (CSRG) in support of a Stem-cell research project that
Doctor Murray Baron presented at the conference in Halifax. The CSRG plans to hold an
important meeting regarding the planning of stem cell transplants for scleroderma in
Canada. Dr. Baron explains “The goal of the meeting is several fold but includes
developing a national strategy for how to perform the transplants, how to screen patients
to decide who is eligible and how to perform research at the same time to try to make the
outcomes even better.”
The CSRG is currently establishing planning meetings to occur next spring.


SURVEY
On behalf of Scleroderma Canada, we would like to forward a link for a survey they are conducting. In order for Scleroderma Canada to effectively support advocacy and relevant research agendas, they would like to find out what issues are of importance to individuals living with Scleroderma.  The survey has questions about symptoms that people with Scleroderma might experience, as well as psychological, social, employment issues and issues related to the ability to obtain appropriate healthcare.

https://is.gd/scpatientsurveyen

They would greatly appreciate you taking the time to complete the survey (link above) which will take approximately 20 minutes.


Scleroderma SASK AGM and Support meeting

Saturday, September 21, 2019 at 10 AM – 3 PM

Board Room Wascana Rehab Centre 2180 23rd Avenue, Regina
10:00am -AGM

1:00pm -Informational Session in Advance Care Planning; a representative with the Advance Care Planning Support Team will provide packages and information for planning in advance for your Heath care choice should you not be able to voice your wishes.
For more information or to RSVP contact Tracey.scleroderma@sasktel.net

Saskatchewan patients and/or their families, friends and caregivers are welcome to attend.