Date TBD ~ CSRG
The Scleroderma Association of Saskatchewan has donated $7,000 to the Canadian
Scleroderma Research Group (CSRG) in support of a Stem-cell research project that
Doctor Murray Baron presented at the conference in Halifax. The CSRG plans to hold an
important meeting regarding the planning of stem cell transplants for scleroderma in
Canada. Dr. Baron explains “The goal of the meeting is several fold but includes
developing a national strategy for how to perform the transplants, how to screen patients
to decide who is eligible and how to perform research at the same time to try to make the
outcomes even better.”
The CSRG is currently establishing planning meetings to occur next spring.
On behalf of Scleroderma Canada, we would like to forward a link for a survey they are conducting. In order for Scleroderma Canada to effectively support advocacy and relevant research agendas, they would like to find out what issues are of importance to individuals living with Scleroderma. The survey has questions about symptoms that people with Scleroderma might experience, as well as psychological, social, employment issues and issues related to the ability to obtain appropriate healthcare.
They would greatly appreciate you taking the time to complete the survey (link above) which will take approximately 20 minutes.