Insight Newsletter Fall 2014

            SASK7   www.sclerodermasaskatchewan.ca

          Scleroderma Insight

       Fall/Winter 2014

 President’s Report

Hello to members and friends.

It is my hope that you enjoyed a relaxing, warm and healthy summer.   We are now well into November and today we have chilly winds and snow.  I guess ‘Old Man Winter’ is here to stay and for most of us with scleroderma, that is not good news.

Our support group meeting was held in Regina on October 18th.  We welcomed 4 new members and enjoyed an excellent presentation by our guest speaker, Terry Johnson-Fong.  Terry is an Occupational Therapist with Wascana Rehab Centre.

As this was an election year for the Scleroderma Association of Saskatchewan, (SASK) and the position of president has not been filled, I have agreed to stay on until our April 2015 meeting.  I’m sure you will find it a most rewarding experience if you decide to fill this position.

The term for each office with SASK is 2 years, however in the past, presidents have served much longer terms.   First president and co-founder, Dorothy Wilson, served seventeen years, Linda Shauf served six years, Sandy MacPheat a two-year term and I have just completed a six-year term.

Prior to the SSC National Conference, each Province was invited to share the history of their organization. Thanks to Olga Sereda and Gerald Shauf, I was able to do this.  Many of our members may not be aware of our beginning and how we arrived at where we are today.   At the SSC National Conference, SASK received an award for 31 years of service as a support group for those living with scleroderma.

 SSC Presentation
Awards Presentation from:
Marion Pacy, Conference Chair to Bob Buzza and Joan Kelly, British Columbia  – 30 years,  and Louise Goulet, Saskatchewan – 31 years.

Don’t count the days – make the days count.

The following is a thank you letter sent to SSC in appreciation of an award received.

At the Scleroderma National Conference in Winnipeg, Saskatchewan and British Columbia received an award for their years of service in offering support to scleroderma patients.

On behalf of Scleroderma Association of Saskatchewan, I wish to thank Scleroderma Society of Canada for recognizing our 31 years of service.   I would also like to share a little information on how we got started and where we are today.

In 1983, the founders Dorothy Wilson and Sharon Benson organized the Saskatchewan Scleroderma Self Help Group.  These two women recognized the need for such a support group and made it happen.  The first meeting was held on May 19, 1983 with 5 Scleroderma patients and 5 support people in attendance.  Sharon was the patient educator for the Rheumatic Disease Unit at Royal University Hospital in Saskatoon.  Dorothy was the first president, and continued as the group’s leader for the next 17 years.

Audrey Herzog prepared the first newsletter in May of 1987 and the first executive was installed in 1992.

In 1993 Gerald Shauf composed the Constitution and Bylaws.  These were approved and enabled our group to become a registered charitable organization.

In 2005 we became Scleroderma Association of Saskatchewan.

Today we have approximately 40 members and anywhere from 12 to 20 members attending our support group meetings. Meetings are held in Saskatoon, Moose Jaw or Regina.  Our mandate is to provide information and support to patients and their families and to promote awareness of scleroderma to doctors and the general public. We hold yearly fundraisers to support medical research.

In 2014, Saskatchewan’s Minister of Health, Dustin Duncan, requested the citizens of our province to recognize June 2014 as “Scleroderma Awareness Month” in Saskatchewan.

Our newsletter ‘Scleroderma Insight’ is published twice a year.

We have a web site at: www.sclerodermasaskatchewan.ca


SSC Photo Award

The award shown here: Is a beautiful  painting of a winter scene painted on a maple leaf by artist: Irene  Patterson.  We will put a description plaque on the painting, and hope to display it at Wascana Rehab Centre, where most of our support group meetings are held.  I would like to thank Sally’s Frame Shop for donating a larger mat and frame to better display it.

 Report respectfully submitted:
Louise Goulet

– – – – – – – — – – – – – – – — – – – – — – – – – – – – – – – – – – – — – – — – – — – – — – – – – — – – – – – – – – – – – – – – —

Scleroderma Research News

 SSC President, Maureen Sauvé, shared exciting information from the Scleroderma International Conference held in Rome in February 2014.

There were approximately 1500 in attendance.  This included patients, physicians and scientists.

The scientists and physicians feel they have had a breakthrough.  Dr. Richard Neubig and collaborators from Michigan State University feel they may have found the off switch for scleroderma.  It is their hope that scleroderma may be treatable in 5 years and perhaps even a cure in 10 years.

Within the past 2 years, (through fundraisers and donations) SASK has donated $18,000 to the Canadian Scleroderma Research Group.

15th Annual Scleroderma Conference Report:

Three SASK members attended the National Conference in September.  This year’s theme

“An integrated Approach – Creating a United Front” and was hosted by Scleroderma Association of Manitoba.

The welcome letter from SSC President, Maureen Sauvé expressed her hopes for those attending the conference with the following:

“Our 15th Annual Scleroderma Society’s Conference is one of the precious opportunities our community has to be together as a community.  It is one of the too few chances we have to look around us and count our supporters in every direction.  The conference offers information, networking, collaboration and emotional support.  It is a jolt of energy that sustains us through to times when we are more alone, and is a launching pad for our future triumphs both personal and organizational.  I know it will prove to be both informative and supportive to you, the patient, your families, health care providers and scleroderma researchers.”

I believe, the 3 attending from our support group, found the above to be true.

If you have never attended a National Conference, perhaps you might put it on your ‘Bucket List’.   Next year’s conference will be held in Hamilton.

Joyce Kellington’s report on 2 of the workshops she attended.

Workshop – Speech and Swallowing with Scleroderma
By: Lindsay Lorteau, Speech and Language Pathologist

Normal speech – covered:
–  Pronunciation
–  Voice
–  Breathing
–  Nasality

Speech Problems – caused by the following:

– Dry mouth saliva flow (Sjogren’s Syndrome) – difficulty pronouncing words
– Mouth opening – difficulty pronouncing words.
– Collagen build-up – difficulty with voice quality and breathing issues.

Speech management – helpful hints:

–  Stay hydrated
–  Avoid straining your voice
–  Avoid noisy areas
–  Speak slowly but naturally
–  Stay well rested
–  Consider speech therapy

Swallowing problems

–  Difficulty with dry foods
–  Difficulty biting and chewing, placing dentures, hygiene
–  Retention, aspiration, with esophageal dysmotility especially with solid food
–  Reflux
–  The feeling that something is stuck

Therapy – used to help
–  Exercise
–  Postural changes
–  Oral hygiene, saliva substitute
–  Diet modification
–  Esophageal dilation
–  Sugarless gum

Pain Busters Workshop
By: Bonnie Hopps, Arthritis Society

What is pain?
–  Pain starts in different parts of your body but lives in your head.
–  Acute pain is usually from an injury or surgery
–  Chronic pain lasts over 3 months
–  Pain leads to fatigue, depression, fear, anger, frustration, stress, tense muscles.

Suggestions to assist with pain
–  Try to keep pain on a leveled plain; don’t let it get too intense before doing something.
–  Heat: try using hot packs, warm blanket or heating pad, warm bath or shower, hot water bottle.
–  Cold: items to use could be a gel pack or frozen pop corn kernels.

Cautions
–   Be sure you can you feel hot and cold.
–   Skin is in good condition
–   Do not apply heat over heat patches or heat producing cream or ointment
–   Consider your posture and positioning
–   If you need to, use support chairs
–   See a massage therapist
–   You may want to try acupuncture
–   Try distractions such as gardening, music, movies and books.
–   Learn to relax – listening to music, meditation, reading, etc.

———————————————————————————————————————————-

 Don’t look back you’re not going that way.

———————————————————————————————————————————-

 Shirley’s notes taken on presentations made at the SSC National Conference:

Bioflex Laser Therapy
by Dr. Slava Kim, M.D.

Laser Therapy uses red and infrared light for the relief of pain, and to accelerate healing and decrease inflammation.  When the light source is placed against the skin, the photons penetrate several centimetres and get absorbed by the mitochondria, the energy-producing part of the cell. This energy fuels many positive physiological responses, resulting in the restoration of normal cell morphology and function.

Laser Therapy has been successfully used to treat a broad range of medical conditions, including musculoskeletal problems, arthritis, sports injuries, post-surgical wounds, diabetic ulcers and dermatological conditions. It treats the underlying condition or pathology to promote healing, thus making the effects long-lasting.

In Raynaud’s, it helps control the frequency and severity with no side effects. Benefits include: pain elimination, reduction of need for drugs and the restoration of normal range of motion and physical function. It is easily applied, non-invasive and non-toxic. It has no known side effects and does not interact with drugs. It provides an alternative for patients who have not responded to conventional therapies and can often reduce the need for surgery.

The physiological effects include: increased DNA synthesis (a protein building block for cell regeneration), improved collagen production (for increased tensile strength of muscles, tendons and ligaments), increased Adenosine Triphosphate production (for the transport of chemical energy within cells for improved metabolism), increased endorphins (morphine-like substances that reduce the sensation of pain) and the stimulation of immune response, lymphatic drainage, and formation of new capillaries and arterioles (for improved wound healing).

Go to Bioflexlaser.com to find a list of clinics near you. There are 12 locations in Saskatchewan, including clinics in Regina, Saskatoon, Prince Albert, Weyburn, Yorkton, etc.

Read: “The Art and Science of Healing with Light” by Dr. Mark J. Rogers

Naturopathic Medicine
by Sara Korsunsky, BSc, ND

Practitioners are all licensed health care doctors. They combine effective traditional therapies with advanced modern medical science, with a focus on the individual, on prevention and on natural solutions for health.

They outline the foundations of health as: proper hygiene, adequate rest and quality sleep, healthy nutrition and digestion, effective stress management, functional organs and an anti-inflammatory lifestyle.

They also outline a number of factors that contribute to disease (scleroderma specific factors are highlighted): poor digestion and elimination (bad breakdown, bad absorption, bad bowel movements), immune system malfunction or suppression (poor recovery, chronic infections, autoimmunity, sclerosis), environmental toxins, unhealthy lifestyle, lack of rest or quality sleep, genetics, and stress.

With regard to infections and poor microbiology, research shows distinct improvement in the gut with the use of probiotics. Many scleroderma patients have a lack of healthy levels of good bacteria and an overgrowth of poor micro flora in the gut. Sometimes, in certain cases, detoxification can be helpful.

Here are some scleroderma specific suggestions: don’t self-prescribe, take vitamin A (for autoimmunity), take vitamin E supplements (for improved skin), and Zinc improves morphea. Inflammation can be improved with high dosages of fish oils, tumeric, Boswellia, cayenne, licorice, flaxseed, hemp and ginger. Meditation, stress management and improved rest also help.

Read: “Nutritional Medicine – A Textbook” by Dr. Alan R. Gaby, MD

 *************************************************************************

Barrett’s Esophagus 

Scleroderma patients who have experienced years of acid reflux (GERD) and esophageal ulcers may sometimes develop Barrett’s Esophagus. With this condition, the tissue lining the esophagus is gradually replaced by tissue that is similar to the intestinal lining. The process is called intestinal metaplasia and can place patients with it at increased risk for a rare type of cancer called esophageal adenocarcinoma.

Searching for the “Off” Switch for Scleroderma

University of Michigan scientists believe that newly discovered compounds hold the key to finding an “off” switch for scleroderma, as well as other fibrotic diseases like Crohn’s disease. These agents were discovered in the screening of compounds related to cancer treatments.

The University has filed for patent protection and is currently looking for a licensing partner to help bring it to market. They are also seeking philanthropic support from the scleroderma community to accelerate the completion of the lab research.

Scleroderma Society of Canada (SSC)

The SSC has a very active Facebook presence and regularly posts useful articles, helpful hints and news items.  www.scleroderma.ca

NOTICE:  The Scleroderma Association of Saskatchewan is desperately seeking volunteers for the positions of President and Vice-president.  The future of the group is very bleak if we do not fill the positions.  These two positions will become vacant at the spring meeting.  Please consider it. 

Take a Moment Strategies for Canadians – The “4 p’s”

CAOT – Canadian Association of Occupational Therapists.  http://www.caot.ca

Priority Setting
Decide for you, what is
Urgent (must be done today).
Important (must be done in the next few days).
For later (must be done this week or month).
Perhaps never (keep the big picture in mind).

But…make sure you are balancing your life and making time for all your occupations— leisure/family and self-care (exercise/eating properly)—not just work, school or household chores. Your health and well-being depends on your ability to balance these, so make time for the activities most important to you!

Planning
Keep your “energy bank” as full as possible, and plan how to spend your energy. Make time to refill your energy reserves:

  • Get a good night’s sleep
  • Listen to music that soothes and energizes
  • Take a walk
  • Take time to eat well and with friends/ family.

Identify your energy boosters and plan time for them each day. These are just as important as the “have to’s” in your day. Plan your week the Friday before (not Sunday night or Monday morning). If you find you have too many urgent tasks, and not enough balance, then re-think your priorities, share or pass some tasks on to others, and learn to say “no” without feeling guilty.

Pacing
Be realistic:

  • Time yourself doing things.
  • Cut your “to do” list in half until you know your speed.
  • Build in time to discuss and problem solve with others, and for unanticipated interruptions, mistakes or distractions. Breathe!
  • It takes less time to do a job right the first time then to do it over again. Take the time needed to do a good job.

If you are anticipating a heavy day, build in time before and after for some rest and relaxation. Your mind and body cannot run at high speed all the time… prolonged stress can lead to serious health problems. Listen to your body’s signals! 

Positioning
Your environment and how you stand/sit (position) yourself can make a difference.

  • Minimize noise, clutter and use lights that are neither too bright nor too dim.
  • Avoid awkward positions and practise proper lifting techniques.
  • Make sure your work area is at the right height and your body is supported.
  • Change positions every 15 minutes.

A wide selection of products, great offers and more.  The CAOT STORE     http://www.caot.ca

________________________________________________________________________________________________

Energy for Everyday Living

Energy Conservation

In today’s high pressure work and home environment, energy conservation is as important as time management.

With the following energy saving techniques, you’ll find that you not only have more energy to do each task but that your energy lasts throughout the day.

It is important to determine and carry out an appropriate balance between work and rest. A well-balanced diet and a good night’s sleep will provide you with the energy for your day.

Try just a few of these strategies to add energy to your day…

Use good posture

  • Avoid excessive bending, reaching, carrying and lifting. Avoid extra trips by using a cart or trolley to carry items.  A small basket keeps cleaning supplies handy. A carpenter’s apron works well for small home repairs.
  • Consider your own body proportions to determine comfortable work heights. Elbows should form a 90 degree angle, shoulders relaxed and spine straight for a proper work height.
  • When carrying, divide the load; e.g. carry two smaller bags of groceries in each arm instead of one large heavy bag.
  • Prevent bending and stooping by using long or adjustable handles on dustpans, brushes, shower mops – even paint rollers.

Reduce fatigue

  • Consider how you can do some jobs sitting rather than standing such as chopping vegetables, ironing and woodworking.   Sitting reduces energy use by 25%.
  • Alternate postures and take frequent stretch breaks throughout the day.
  • Incorporate a system of work and rest into activities.  Short rest breaks of five minutes during daily activities can help increase overall endurance.

Modify activities

  • Air-dry dishes and use freezer-to-microwave dishes.
  • Use a lightweight steam iron.
  • If your laundry room is located downstairs toss dirty linen down in a pillowcase, rather than making an extra trip.
  • To lift items out of the oven, kneel alongside the oven, rather than bending over.
  • To reduce the amount of bending in making the bed, use a lightweight duvet rather than several layers of sheets and blankets.

Create a comfortable environment

  • If the surrounding conditions are pleasant the job will be less tiring and more enjoyable. Listen to your favorite  music when doing chores. Good lighting, comfortable clothing and pleasing colours set the stage for work with less strain.

Practice time management

  • Pace yourself; alternate light and heavy tasks.
  • Divide activities throughout the week instead of overdoing it in one day. Keep a schedule on the refrigerator to remind you and your family of everyone’s responsibilities.

Organize your work

  • Plan your activities first to avoid extra trips. Assemble necessary supplies and equipment prior to doing the job.  For example, arranging garden supplies and tools prior to planting.
  • Group articles that are used together; e.g.  cleaning tools and cloths.
  • Store heavy articles in the area easiest to reach, light articles in the high and low areas.

 A wide selection of products, great offers and more.  The CAOT STORE     http://www.caot.ca

##############################################################

Facial Exercises:

Ideally, apply warmth to face, moisturize and do some tissue massage prior to exercising.  Hold each position 3-5 seconds.  Repeat 3 times. 

  1. Raise eyebrows as high as possible.  Hold.  Then bring eyebrows down into deepest frown.  Hold.
  2. Wrinkle bridge of nose (squish upper lip and eyebrows together as if smelling a bad smell!)
  3. Close eyes very tightly, then open wide.
  4. Flare nostrils.
  5. Do an exaggerated tight wink, using cheek muscles. Wink each eye separately.
  6. Open mouth as wide as possible, both with teeth showing and without.
  7. Make the biggest possible cheesy smile.
  8. Purse lips tightly; pucker lips tightly.
  9. Close mouth. Puff cheeks with air.  Hold. Blow air out and suck in cheeks.
  10. Stick tongue out as far as possible.  Move it side to side.
  11. Look up (tip head up slightly). Open mouth fully.
  12. Say “apple”.  Exaggerating the first syllable.

Please Note:  These exercises are a general guideline. Consult a therapist to determine the most appropriate exercise program for you.

Terry Johnson-Fong
Occupational Therapist
Adult Program, Wascana Rehabilitation Centre
October 2014

———————————————————————————————————————————-

Hand and Arm Exercises:

Hold each position 3-5 seconds.  Repeat 3 times.
1.               Knuckle Bending (MCP Flexion)
Use the heel of 1 hand to bend down the knuckles of the other hand.

2.             Finger Straightening (PIP Extension)
Place hand on table.  Use other hand to flatten the fingers.  Place hands together in prayer position. Try to flatten fingers so the surfaces of both hands are touching.

Straighten each finger separately, using fingers and thumb of other hand to apply 3-point pressure.

3.               Thumb Web Space

Make “L’s” with each thumb and index.  Push the pads together to stretch the web space.  Place opposite forearm into thumb web space and apply some pressure.

4.               Thumb Flexion
Try to touch pad of thumb to base of little finger.

5.               Finger Spreading
Place side of opposite hand between each finger, stretching each finger web space.

6.               Hand Strengthening
Try to assume the “finger shelf” and “finger hook” position.  Make a tight fist. Then fully open the hand.

7.               Wrist Bending
Place hands together in prayer position.  Try to keep heels of hands together while lifting elbows.  Try to place back of hands together.

8.               Forearms
Turn forearms at elbows so that palms are facing upwards. Provide some over-pressure at wrist level with other hand if this movement is tight.  Turn forearms at elbows so that palms are facing downwards.

9.               Elbows
Bend fully.  Straighten fully.

10.            Shoulders
Try to move through full range.  Reach up over head. Reach to back of head. Reach to small of back. Stretch arms out to the side and move them up towards ears.

Please note:  These exercises are a general guideline.  Consult a physical or occupational therapist to determine the most appropriate exercise program for you.

 Terry Johnson-Fong
Occupational Therapist
Adult Program, Wascana Rehabilitation Centre
October 2014

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^
Occupational Therapy Suggestions for the Management of Scleroderma 

Raynaud’s Syndrome:

  • Don’t smoke!
  • Avoid dependent position, or prolonged static position
  • Watch for blanching; if it occurs move, massage or apply warmth
  • Avoid direct contact with any cold surface; use gloves or mitts if unavoidable
  • Dress warmly and in layers
  • Skin massage
  • Use moisturizers
  • Biofeedback
  • Specialty gloves
  • Medication/medical management

Skin Mobility:

  • Avoid drying agents (ex. harsh soaps, hot water)
  • Use moisturizers regularly
  • Paraffin wax bath
  • Skin massage

Stiffness:

  • Take baseline measurements
  • Stretch every day!
  • Do stretches slowly, ensuring that you are stretching to your maximal end point
  • Hold each stretch for 5 seconds.  Repeat 3 – 5 times

Hands and Arms

  • Baseline measurements:  Span drawing (stretched hand tracing)
  • Knuckle bend template (MCP flexion)
  • Thumb web space span (object that just fits in web)
  • Refer to stretches on attached sheet

Legs

  • Hips
  • Knees
  • Ankles

Chest Wall

  • Deep breaths
  • Stretches to open chest
  • Good posture is very important

Face:

  • Baseline measurement with ruler of height of mouth opening
  • Refer to stretches on attached sheet

Calcinosis:
Use of padding to protect prominences

Visceral Involvement:

  1. Smaller, more frequent meals
  2. Very erect sitting posture while eating, and for 30 – 45 minutes afterwards.
  3. Elevate the head of the bed with risers (avoid using extra pillows)

Pulmonary Fibrosis and Cardiac Involvement:

  • Good posture
  • Regular exercise
  • Respect fatigue. Implement work simplification and energy conservation principles.

Pain Management:

  • Heat (Paraffin wax, moist heat)
  • Massage
  • Relaxation strategies (deep breathing, progressive muscle relaxation, imagery)
  • Biofeedback

Compensatory Strategies:

  • Modified approach to tasks
  • Assistive devices and specialized equipment
  • Home modifications and barrier free design

Terry Johnson-Fong
Occupational Therapist
Adult Program, Wascana Rehabilitation Centre
Ph:  306-766-5610
October 2014

———————————————————————————————————————————-

 October 18, 2014 Meeting Minutes

The fall meeting of the Scleroderma Association of SK was held at the Wascana Rehabilitation Center in Regina on Oct. 18, 2014 with 15 members and guests in attendance.

President Louise Goulet called the meeting to order at 10:20 a.m. and welcomed those present, and asked everyone to introduce themselves.  A moment of silence was observed for those deceased since the last meeting – Sharon Foster, Patricia Wilhelm and Angela Schluchter.

Moved by Louise Goulet, seconded by Janet Campbell that the agenda be adopted with the addition of a CSRG report.  Carried.

The minutes of the last meeting were declared adopted as read by Louise Goulet.

The Treasurer’s report showed a bank balance of $17,618.10.  Moved by Gerald Shauf, seconded by Janet Campbell that the report be adopted as printed.  Carried.

In correspondence, brochures were sent to newly diagnosed persons who have contacted Louise.  Several new pamphlets are available from the Scleroderma Society of Canada.  A good deal of our correspondence is now done on the computer.

Minister of Health, Dustin Duncan, declared June as Scleroderma Awareness Month for 2014.

The Steak Night Fundraiser was very successful, as was the quilt raffle and 50-50 draw.

Louise Goulet was guest speaker at a CWL Strawberry Social and had Scleroderma cards available to guests.

A patient with Scleroderma was upset by the care she received at a hospital and the lack of awareness of the disease by caregivers.  Subsequently, the hospital arranged for a Scleroderma information table at an education day.  Likely, the frequent staff turnover contributes to the lack of knowledge of needs of Scleroderma patients.

The process of election for new executive was overseen by Andy Sereda.  He stated that no members had offered their names for the position of President and questioned how to proceed in these circumstances.  There was discussion on how to share the position and further discussion will take place after lunch.

The annual Scleroderma Society of Canada Conference was held in Sept in Winnipeg.  Louise Goulet, Joyce Kellington and Shirley Gillander attended.  Reports on sessions attended are published in Scleroderma Insight.

Louise Goulet had compiled a history of our group over 31 years and at the conference was awarded a mounted picture of a real maple leaf with a scene painted on it.  There was discussion on a public place to hang it for viewing.

Scleroderma Insight impressed the SSC and they asked for copies to be available at the conference.

Cabella’s has heated gloves with rechargeable batteries that last for 8 hrs.  A sample was brought to the SASK meeting for display.

Following a lunch break, the executive met briefly to discuss election options.  Andy Sereda suggested that we curtail fund-raising activities to lessen the load of work done by a few members and revert to our original aims – sharing knowledge to help each other.  It was decided to maintain status quo until the spring 2015 meeting with the executive as is at present.

In sharing time, one member reported that calcinosis can be relieved by soaking the hands in a bread and milk mixture – the hotter the better.  One member is concerned about a swelling above her left wrist of unknown cause, which limits mobility and function.  A few members have calcinosis in other areas – knee, elbow and wrist.  One member reported being diagnosed with bladder cancer and described the treatment that was successful with no new growth found.

Monique Sereda introduced the guest speaker, Terry Johnson-Fong, an Occupational Therapist who works at the Wascana Rehab Center for RQHR.  She has a comprehensive knowledge of the physical effects of Scleroderma and Arthritis and spoke on how to deal with problems in any daily activity or task and how to improve or at least maintain function and capabilities.  A more complete report can be found in Scleroderma Insight.  She was thanked for her presentation by Gerald Shauf.

Results of the executive’s post-lunch discussion were reported to the members.  Moved by Andy Sereda, seconded by Joyce Kellington that the present Executive remains until the next meeting in April 2015.  Carried.

It was suggested that we get a speaker on Laser Therapy for a future meeting.

The CSRG has discontinued paying the $25 travel stipend to those involved in the national study. Their major funding sources are no longer contributing and their studies are in jeopardy.  Moved by Andy Sereda, seconded by Dave Sereda that we donate $10,000 to CSRG.  Carried.

The Scleroderma International Conference was attended by the National President of SSC.  She reported that it was divided into the Scientific Side and the Patient Side.  It is possible that a cure for Scleroderma will be found in 10 years.  It will be 5 years before human studies can be done, and for better treatment to be available. 

Adjournment by Ken Goulet.

 

———————————————————————————————————————————-

SASK Fundraising & Awareness Items:

We have the following available:

Floral note cards: There are 8 different floral designs in each package.  Scleroderma contact information is printed on the back of each note card. They are very pretty cards to use or give as gifts. The cost for a package of 8 notes and envelopes is $6.00.

Magnetic ribbons: These are similar to the lapel pins. They are 8 inches x 2.5 inches and are $2.00 each. Put them on your car or your refrigerator.

SASK6

Lapel pins: The attractive lapel pins are dark blue with Scleroderma printed on them in white letters. The cost is $3.00

Please contact Gerald Shauf (306) 634-3433 or Janet Campbell (306) 757-0962 for more information or to place an order.

Be who you are and say what you feel because those who mind don’t really matter and those who matter don’t mind.

 Saskatchewan Parking Program for the Disabled: Phone: (306) 374-4448. Handicapped parking permits cost $10.00. Successful applicants receive parking placards allowing them to park in designated areas for handicapped. Applications are available at any branch of Saskatchewan Abilities, or any motor vehicle issuing office. Ask your doctor if you qualify. Try to look at getting the placard as a way to make your life easier.

———————————————————————————————————————————-

 SASK EXECUTIVE
President/Fundraiser:
Louise Goulet:
Phone: 306- 584-1950
louise.goulet@sasktel.net

Vice-President/Fundraiser:
Shirley Gillander
Phone: 306-525-6377
sdgill@sasktel.net

Recording Secretary:
Olga Sereda:
Phone: 306-693-1936
No email address

Corresponding Secretary:
Norma Redman:
Phone: 306-532-4449
norperredman@sasktel.net

Newsletter co-Editor:
Janet Campbell:
Phone: 306-757-0962
janet.campbell@uregina.ca

Treasurer/Newsletter co-Editor:
Gerald Shauf
Phone: 306-634-3433
465 Willow Bay
Estevan, Sask. S4A 2G3
glshauf@sasktel.net

 There are three kinds of people:  those that make things happen, those that watch things happen and those that wonder what happened.

 DISCLAIMER: The Scleroderma Association of Saskatchewan does not endorse any drugs or treatment. We wish only to keep you informed. Please check any treatment with your own physician.

 If you have any suggestions, health tips, or stories you wish to see featured in Scleroderma Insight please mail or email them to Gerald Shauf or Janet Campbell. We would like to hear from you and share your ideas/stories/health tips with all our members.

 Ten Things to Take Time For:

1.  Take time to work – it is the price of success.
2.  Take time to think – it is the source of power.
3.  Take time to play – it is the secret of youth.
4.  Take time to read – it is the foundation of knowledge.
5.  Take time to worship – it is the highway to reverence and washes the dust of the earth from our eyes.
6.  Take time to help and enjoy friends – it is the source of happiness.
7.  Take time to love – it is the once sacrament of life.
8.  Take time to dream – it hitches the soul to the stars.
9.  Take time to laugh – it is the singing that helps with life’s loads.
10.   Take time to plan – it is the secret of being able to have time, to take time for the first nine things.

Cream of Volunteer Soup

Ingredients:
Time
Talent
Energy
Discipline
Persistence
Joy
Natural colour
Love
Generosity
Good Will
Humour
Flavour
Preservatives

Directions:
In a pleasant atmosphere, mix volunteer skills with the task at hand.  Sprinkle liberally with time.  Add responsibility to taste.  For extra richness, pour in plenty of appreciation.  Stir until smooth.  Recipe may be doubled or tripled as needed.

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Products That Benefit Disclaimer:  These products were recommended by scleroderma members and are not necessarily suitable for everyone.

MELT® HAND AND FOOT TREATMENT

The MELT Hand and Foot Treatment is an innovative self-treatment technique that can make your whole body feel better in just minutes. By stimulating the hands and feet, this easy-to-learn treatment can help reduce these common painful symptoms in just minutes a day:

•hand, foot, back, and neck pain
•plantar fasciitis, bunions, neuromas
•arthritis, carpal tunnel syndrome, trigger finger
•even headaches, gut issues, and insomnia!

The MELT Hand & Foot Treatment Kit includes everything you need to start feeling better now: 8 MELT Treatment balls (2 of each size), 1 Bunion Reducer Band, and two illustrated instruction guides, all in a convenient travel case. Balls and band are latex free.

These quick self-treatments can be done anywhere – home, work, or travel.

$49.99 US funds.

Hand&Foot

ORDER the new MELT Hand and Foot Treatment DVD plus the Hand and Foot Treatment Kit and save when you order the two together!

https://www.meltmethod.com/store/MM00002

CABELA’S S2 GLOVES

These gloves will take the chill out of any winter activity. Featuring patented Microwire® heating technology that’s powered by compact, lightweight 7-volt lithium battery packs; you’ll be surrounded in warmth. Each microprocessor-controlled battery pack is rechargeable. Because this technology helps block your body’s natural response to cold, it keeps blood flowing to your extremities to ensure hands and feet stay warmer longer. Adjustable heat levels.
Colour: Black Sizes:  Men’s M, L, XL and 2XL
$199.99 Canadian.
Gloves

http://www.cabelas.ca/product/43677/cabelas-s2-gloves 

CLAY IN MOTION HANDWARMER© MUGS

Fingers rest comfortably inside the pocket of this ergonomically designed mug. Mug capacity is 14 oz. Contoured for right-handed and left-handed drinkers. Mugs are dishwasher, oven and microwave safe.  $18.00 each. Available in 8 different designs.

Mugs

http://clayinmotion.com/catalog/category.php?category_id=46

———————————————————————————————————————————-

Everyone brings joy to your life, some by entering, and some by leaving.

May Christmas lend a special charm to all you chance to do. – Garnett Ann Schultz

 Christmas now surrounds us; happiness is everywhere. – Shirley Sallay

As we work to create light for others, we naturally light our own way. – Mary Anne Radmacher

Other things may change us, but we start and end with family.  – Anthony Brandt

I will honour Christmas in my heart and try to keep it all year. – Charles Dickens

Cherish every moment with those you love at every stage of your journey. – Jack Layton 

Peace on earth will come to stay when we live Christmas Day every day. – Helen Steiner Rice


– end –